Primary care
Recommendation 1
To prevent a recurrence, complete excision is the best option
This information is AI generated and has not yet been reviewed by a specialist physician. AI can make mistakes.
Recommendation 1
Histopathological examination after complete surgical resectionRecommendation 1
Histopathological examination after complete surgical resectionZebraMD is partnering with Ambry Genetics for clinical-grade whole genome testing for rare diseases. Ambry accepts insurance. If you don’t have a physician to order this test, join our referral list and our team will reach out.
Recommendation 1
Laparoscopic resectionRecommendation 1
To prevent a recurrence, complete excision is the best optionRecommendation 1
No specific physicians specialize in this condition, often managed by General Surgery. Referral to Medical Genetics Department, if available. Initial virtual care is also available through organizations like TeleRare Health.Follow to receive regular updates to the latest research development on this disease via email newsletter.